The War Inside My Womb

Living with Endometriosis.

Hi, my name is Lilly and I live with endometriosis. And while endometriosis is apart of my story, it does not define me. Through this blog, I share the painful, messy and sometimes hopeful reality of living with this chronic illness. By speaking honestly about both the struggles and the small victories, I hope to bring light to the dark and remind others that they are never alone in this fight.

Category: Life with Endometriosis

  • The bags are packed. Everything is ready. Tomorrow morning, I leave for Brisbane. This weekend the pain has been relentless, each wave crashing over me like a cruel reminder of why this surgery is so necessary. My body is exhausted, my mind stretched thin, and now the nerves have begun to creep in. They catch…

  • Each day feels like a lifetime, but the finish line is finally in sight. September 23rd. Brisbane. That date has become everything to me. My anchor, my finish line, my lifeline. Every time the pain feels unbearable, every time the bleeding drains the strength out of me, I whisper it like a mantra: just make…

  • I finally found a job I love. As a chiropractic assistant, I get to be part of something meaningful. On the surface it might look like just admin work, but to me it is so much more. I get to support people, to be part of their care, and to work alongside a team who…

  • I thought the hardest part would be the excruciating pain, the excessive bleeding, the mysterious mass that no one seemed to take seriously, and the endless waiting for surgery. But now, on top of all of that, my body has decided to throw one more challenge at me: a chest infection. It feels like the…

  • Today I saw my GP for the first time since he told me to go straight to the hospital. I felt like someone was as frustrated as I am. He was furious with the hospital for discharging me without doing the ultrasound he had requested for them to do in his letter that he gave…

  • In the past few weeks, I have been admitted to hospital twice. For days at a time. And both times, I left with no answers. I was having fevers with a body temperature dropping to 30.5. My blood pressure fell to 90 over 53. My body was telling me something was deeply wrong. I could…

  • A lesson I wish I had learned earlier in life. I wish I had known that pain this strong was not normal.I wish I had known that bleeding through pads at school, doubled over in bathrooms, crying in silence, was not just “part of being a girl.”I wish I had known that the words “just…